Wednesday, September 29, 2010

September 29, 2010

The improvement in Sean’s mobility took a couple strange turns over the past couple weeks. A few weeks ago he was walking very well (with assistance from the JFK staff) and then he had a bad week where progress seemed to stop. But, this past week, Sean came through and seems to be back on track. He was walking around the Nemazie house with assistance. So, progress is slow and sometimes requires lots of patience, but it is coming.

As far as his vision goes, he had an eye doctor appt last night and there was a marked improvement in getting that left eye to come in so the glasses seem to be helping him. He still sees double but things are improving slowly.

He got a new phone (with a keyboard) a week ago and is texting on his own now. I've noticed that he seems to be using his laptop more--checking Facebook and his fantasy football league. So, text Sean or hit him up on Facebook…he is awaiting contact.

Sean came home for his first overnight visit on Saturday 9/18. He did really well sleeping in his own bed for the first time since January (it was the first time he's actually been upstairs in the Nemazie house). He told Kathy that he was so glad to be home. They are hoping to do as many of those as they can especially around the holidays.

He also had a visit on Sunday 9/19 from three friends from UD. He really looked forward to their visit and they sat outside on the patio talking about school, eating pizza, and then watched some football. I used to think all they had down there at UD was memories of Joe Flacco. I’m really starting to like you folks.

Sean's visit to Yankee stadium was quite a hit up at JFK. Kathy put the pictures of him with Jeter, A-rod, Mariano, and Pettitte up on his door and it was the topic of conversation for a good week. People were asking to take some of the pictures. One of the aides took the one with Sean, Tim and Jeter and told Kathy she put it in a frame and has it on top of her TV! The staff at JFK was very appreciative that they did this for Sean and want to send a letter to the Yankees organization to thank them.

More to come…..Steve

2 comments:

  1. Hey Sean, so glad to hear that things seem to be back on the right track. Just thinking about the visit to the stadium, it must have been so cool.....something you'll never forget. Sean hanging with "da boyz"......woohoo. Coming home also has to be awesome....hopefully the visits will be much more frequent soon enough. Everybody is so proud of you....continue to work hard and good things will happen. We love ya with all of our hearts and souls....
    The Rubinsteins

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